So as all of my fellow spoonies know, when you have an auto immune disease their are very few days that you feel “good”. Very few days where you have no pain, no digestive issues, no fatigue, no symptoms of any kind. Actually I don’t think I can recall the last time I felt that way.
I should buy stock in antacids
Some days are better than others obviously, but all days have their set of challenges. As for me the usual is digestive turmoil, left hip and wrist pain and headaches….oh the headaches. I swear I live on Tylenol and tums, I have them in my bag at ALL times. While most of these things can be alleviated with over the counter medications and the obvious daily prescriptions, the emotional toll is by far the worse. The staying home when you want to go out because you honestly cant keep your eyes open, or you’re so nauseated that you honestly think you might toss your cookies at any second.
As I’ve previously stated I am newly married. While our marriage is new, we have been together seven long amazing years. We met in college at age nineteen and I was smitten. He is amazing, and while he supports me for the most part he often gets frustrated at my “sickness”. See the thing is he knew me before all this, he knew healthy me, skinny me, fun me. While both of use have changed over the years, mine hasn’t always been for the better. While I appreciate his understanding I also feel terrible, because lets be honest it isn’t fair. I try not to complain every time I feel badly because if I did he would surely think I was a nut job. But even so he says ” you’re always sick”.
At the end of the day he is my rock
While I’m not sure he fully understands the things going on in my body, he listens and he always tries to make me feel better. To tell you the truth I don’t even know what’s going on in my body, and neither do my doctors half the time. While that can be discouraging, at the end of the day I have someone who loves me, respects me and cares for me when I need it the most, Everyone deserves that. Don’t settle for anything less than that.
Get your learn on!
This part is for all the spouses out there. Educate yourself! Try your best to learn as much as you can about what your partner is going through, because trust me you don’t know the half of it. They aren’t always going to tell you. Maybe they feel whiney or helpless, maybe they feel like you wouldnt understand. My advice is listen, take it all in. Read articles or books on whatever ailments they have and learn to understand. That will mean more to them than any gift you could ever give.
Corinthians states that ” love is patient, love is kind”, this should always be true.
Do not give up!
Above all DO NOT GIVE UP!!! Do not stop working on yourself, do not give in to your illness. Workout, eat healthy, experience things even when getting out of bed can be hard. If you don’t, you will regret it take my word on that. Even if you don’t have someone supporting you, helping you, loving you. Do it for yourself, love yourself and fight for your life. Do not quit. Do not give up. You have so much to give and the world needs you.
Anyone needing support feel free to contact me. I am always happy to listen. I know how much we need that sometimes.
much love and kisses